°Ù´ºÁ´

Save the date: Thursday 5 November 2026, 9.30-16.30, at RCPCH Office in London

Information on the programme and how to register will be available shortly. In the meantime, see the Learning Objectives below.

Join BACD and °Ù´ºÁ´ for this Short Course on Neurofibromatosis Type 1 (NF1)

This short course is aimed at Consultants in general paediatrics, community paediatrics, or neurodisability who currently manage NF1 patients but lack confidence or structured training and Senior Trainees approaching consultant level who will run secondary care NF1 clinics.

Summary of Learning Objectives

By the end of this study day, participants will be able to:

1. Strengthen Core Knowledge of Neurofibromatosis Type 1 (NF1)

• Understand the foundational science and clinical features of NF1.
• Recognise common and less typical clinical manifestations in children.

2. Apply National Surveillance Guidelines

• Gain confidence in following evidence‑based surveillance pathways.
• Know what to monitor, when, and how often in secondary care settings.

3. Manage NF1 in Everyday Clinical Practice

• Develop practical skills for managing NF1 across childhood.
• Understand approaches to supporting both children and their families.
• Learn how to identify scenarios requiring escalation or intervention.

4. Coordinate Care and Specialist Referrals

• Identify when patients should be referred to specialist NF1 or tertiary services.
• Improve decision‑making around multidisciplinary involvement.

5. Support Transition to Adult Services

• Learn best practices for transitioning adolescents with NF1 into adult care pathways.
• Understand what adult services expect and how to prepare young people and families.

6. Build Confidence Through Interactive Learning

• Apply knowledge through lectures and small‑group workshops designed to increase confidence in diagnosing and managing NF1 in secondary care.